optician and nf problems

so i saw the optician on friday and i have a freckle on the back of my eye near the nerve which is an nf problem i am being sent to a consultant and im hoping that its nothing to worry about my prescription has also increased so i need new glasses im hoping i dont wait too long and all goes well with the consultant and this is nothing to worry about

Zebra drawing

I am up late struggling with my lungs so drew a zebra to cheer me up

spinal clinic and drama performance

so yesterday was spinal clinic it went as expected they dont operate on adults unless the curvature is causing problems with organs she was angry as am i that when i went into foster care my medical care was not transfered correctly said  should of had the surgery in my teens but cause social services and child health messed up  didnt she has however made refferals to the people ive been tryng to see for a long time pain team and rhumetology so thats good
today we did a performace in drama the group i perform with is for young people wth experience of self harm , and we performed to proffessionals at a conference about access to services and the gaps in services for young adults age 18-25 it went well and me and one other girl stayed till the end some of the others did the performance and then had to leave the performance went well everyone complimented us and said how it was really effective to see it played out instead of just being told stories of where the services are going wrong the rest of the conference was really interesting and t felt amazing to get our voices heared and tell people who are partly responsible for making changes and have them listen so hopefully it wont go wrong for other people in the future although these things take time and ill likley be 25 when they are in place it gives me a good feeling to know that i may have helped to help them make sure other young people do not have poor care in the future
after this i went into town managed to buy k tape and ice packs pretty cheap also bough lots of lush bath products along wth a few things i needed i probably over did it toay i am very sore and feeling dissey on and off but i am happy  have had a really good day i got alot done and i feel content even if my body is giving me the middle finger

eds poem

joints pop toes click 

im still in bed i feel sick 

back crackles as i sit 

even though the skies not lit

hips ache head pounds 

its too early for all the sounds 

time to get up and face the day 

id rather be in bed to stay 

crack click crunch pop 

my body's musical ad it wont stop 

body aches body throbs 

i watch others head to their job

take a breath as my lungs wheeze 

allergies that make me sneeze 

i yawn as i get up 

im tired before im even up 

chronically ill they dont understand 

how much effort it takes to stand 

or how hard i try to walk

how much i concentrate just to talk 

i may seem boring i may seem lazy

some might even think im crazy 

but im trying i really am 

i am doing the very best i can

not everyone who is in a wheelchair is totally wheelchair bound

bad chest

been struggling to breathe well since last night , it started with just having a clogged up chest and now today i have a constant wheeze but im hoping i stay out of the hospital now that i have at home neb machine and the new tablet for asthma that i can just see the gp get some steroids and that my lungs will improve without needing to be admitted

escaped chinchila

so millie got out last night and then got really sleepy once i caught her cue another vet call who reassured me she was just tired and scared i was worried she had found a pill i had dropped or something seeing as i couldnt see it when i found her but shes fine just likes to keep me on my toes this meant sleeping late and the vet nuse ringing this morning to check on her the vet wants to do a general health check he was gonna do it this weekend but the nurse heared she was ok and that was that i will ring monday and get them to do a general check on them both then as it will likley be cheaper
health is so so chest is acting up and had to do a neb last night and stuggling today but will be ok joints and back are sore but ok
feeling guilty about millie escaping but i know deep down i could not of prevented it but instead i have put a little baby gate over the entrace to the alcove the cage is in so to get out now they have to get past the cage and the gate to get into the flat which will hopefully work