Sunday 26 June 2016

surgery , tube , admissions , abdominal adhesions

So its been a while i have a peg-j tube now to feed and have meds the tube displaced a week later and needed replacing then a month later i was admitted again with what i thought was another displaced tube vomiting tummy spasms severe pain dehtdration where i was told i am full of adhesions i they saw on my last ct since that was done before my tube i gad  no abdominal surgeries or procedures then so nothing that way to cause it ive been told they are caused by the eds my insides being too mobole rubbing together causing adhesions which cause severe abdominal pain . I had surgery tues to fuse my mcp joint in thumb and have been looked after by friends this week it was far more painful than i expected and still is despite painkillers but is improving im told theres a 12 week recovery time and im still week one i saw rhymetology a few weeks ago and now have a refferal to be seen in london about my eds which given recent complicatons cant come soon enough im also being sent for a tilt table test they are pretty sure i have pots .. ok i think thats everything sorry for the lack of updates this year most of this year has been spent in hospital due to gastroparesis but i will try and update more often