me so far and about me

about me
i am 24 i live in south wales (uk) i live alone in a flat with support in the community and have 2 chinchillas called millie and molly
i enjoy spending time with my pets and friends doing craft activities listening to music and watching movies
i am terrified of spiders and creepy crawlies
my favourite thing to do is have a bath using a lush bath bomb and get into a freshly made bed
about my illnesses
i have ehlers danlos syndrome type 3
this is hypermobility type because of this i dislocate my joints easily and daily and am often wearing splitns or in and out f plaster , this is due to faulty collagen because of this i also suffer from dysautonomia, GRD , scoliosis bladder problems and other gastro problems which are still being investigated i suffer from chronic pain because of this and am in a wheelchair part time ,
this illness by far is the one that takes its toll the most the pain and mobility issues can really take their toll
i have neurofibromatosis type 1
this is a genetic disorder that causes tumours to form on the nerves in the body i only have 2 tumours one in my gastro system and one on my skin on my back the gastro tumour can cause some digestive problems but the nature of these is that they are hard to remove so unless it grows its easier to treat the discomfort with medication , as a child i had high blood pressure due to this illness and also seizures i very occasionally still have seizures but the high blood pressure corrected itself when i hit my teens
brittle asthma , this is a severe type of asthma that only effects 5 percent of asthmatics this means im in hospital regularly for asthma attacks that can escalate very quickly this is very scary and fristrating but im currently trying a new medication to see if it helps i often do well on a new med for a few months then my asthma wil become ucontrolled again but im keeping my fingers crossed
underactive thyroid this is self explainitory i take medication get regular blood tests although this can also make me tired all the time make my muscles tired and ache and when low i can have problems with my iron and b12 levels
scoliosis im currently waiting to see a spinal surgeon as my scoli has been causing alot of problems so watch this space